I thought I write to you about my life as a mother and my current challenges, I’m facing on a daily basis.
As you know I’m a single of mum of 3 a Daugther of 10 and twin non identical boys of 3. So life for me is very demanding and busy. My boys were born at 32 weeks and were 8 weeks early. But have come along way from their births. But right now, I’m having challenges with 1 of them.
From the age of 1, I have noticed something isn’t quite right with him. I told the various health visitors I think something isn’t right and they all keep saying it’s his age. They both currently under paedritician, speech and language thepary and portage.
From the age of 2, things got worst. Not sleeping well and getting up 6 times during in the night, speech not clear or well, eye contact not very good. Also, screaming and meltdowns especially in public, crowds and on London transport. Getting the comments from the public and stares can be uncomfortable and distressing and tearful at times .Yet again, I was told by professionals it’s his age and he can’t be assessed for now.
I have been backwards and forwards to my doctor whom at one stage blamed me and my parenting skills and also, the locum paedtrician whom also said its behavioural and I need parenting classes.
How could it be me, when I have two other children whom are fine ?
He has now started lining up things eg cups, shoes in order of sizing and colour. Here’s an example for you to see
If you move these, he has a meltdown. He doesn’t cope with changes and has a poor apetite and only eat certain things. He has meltdowns which can last for over hour and it isn’t nice and becomes aggressive sometimes.
Most of the time, we are in the house as he cant cope in crowds and only recently started taking London transport with him. He copes fine at nursery. I recently sawed our original paedtrician whom I stressed my concerns to and he listened.
He believes, he has some autistic traits. But the classic is he is gathering the information before assessing him and can take 9 months to be assessed and still wants me to go parenting classes. So now, I have to carry on the way I have with the support of my family.
The system sucks and yet the blame is on you. It’s hard but I deal with it and get on with it and pray and hoping that my son gets assessed and gets the support he needs to help him progress in life.
I don’t understand the system. In my eyes these medical professionals want to help mothers whom cry wolf that their child this and that and get all the assessments and support for a child there’s nothing wrong with . Where me, now is fair and honest and my child is facing these issues and challenges whom the medical professionals don’t take no notice off and listen or help.
Well I ain’t giving up with a fight and proud to be a mother and that. So please support Austim awareness month and understand what a mother like me goes through on daily basis.